You know your child best right? You are the expert, you have to make it your job to know everything about whatever disability you’re dealing with.

Often times we are dealing with multiple disabilities and diagnosis. We are dealing with several different specialists, pediatricians, pharmacists, therapists, social workers and the list goes on. Don’t get me wrong, I love all these people and they are very necessary in caring for our kids. What I’m saying is that as parents and caregivers, it is our job to be knowledgeable in everything that they are telling us to do with our children.

Just in caring for our children daily, we get to know their strengths and limitations and what works best for them. The routines, tricks and tools that you use with your child become almost nature to you. Awesome. But take it a step further.

• When you meet with the professionals, have a list of questions ready to ask them, make sure you understand what it is they are telling you. If you don’t, get them to explain it again.
• Go online and research the disability, any conditions, ALL medications and what the side effects are. Find out what has worked best for other kids with this disability. Find out EVERYTHING you can.
• Keep a journal. Include any significant events, any meetings you have, behaviors, diet, seizure activity, medications changes… all of that stuff. You won’t be able to remember everything in your head.
• Talk to the pharmacist, get the fact sheet on medications.
• Find other parents that would be a good support for you. It helps to talk.

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