February 2, 2008
Serious Technical Yuckies

I have to make my apologies. I haven’t been to this blog in a very long time. One of my goals for 2008 is to post on it regularly.

I did my first post today, and I have to say. Yuck. This site is very out dated and is having a lot of technical problems.

So…

  1. Look for a new look very soon
  2. Look for better functionality
  3. Look for some great information to help you help your kids :)

Expect the Best,

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Piled on: What's on My Mind?,
Heather posited at 8:13 pm | 3 comments so far
You Are the Expert. Get the Knowledge You Need.

You know your child best right? You are the expert, you have to make it your job to know everything about whatever disability you’re dealing with.

Often times we are dealing with multiple disabilities and diagnosis. We are dealing with several different specialists, pediatricians, pharmacists, therapists, social workers and the list goes on. Don’t get me wrong, I love all these people and they are very necessary in caring for our kids. What I’m saying is that as parents and caregivers, it is our job to be knowledgeable in everything that they are telling us to do with our children.

Just in caring for our children daily, we get to know their strengths and limitations and what works best for them. The routines, tricks and tools that you use with your child become almost nature to you. Awesome. But take it a step further.

  • When you meet with the professionals, have a list of questions ready to ask them, make sure you understand what it is they are telling you. If you don’t, get them to explain it again.
  • Go online and research the disability, any conditions, ALL medications and what the side effects are. Find out what has worked best for other kids with this disability. Find out EVERYTHING you can.
  • Keep a journal. Include any significant events, any meetings you have, behaviors, diet, seizure activity, medications changes… all of that stuff. You won’t be able to remember everything in your head.
  • Talk to the pharmacist, get the fact sheet on medications.
  • Find other parents that would be a good support for you. It helps to talk.

I try to make it a point to educate myself.

I’m telling you this because I’ve been caught recently, not having all of the information that I need. It had to do with some side effects from a medication that I wasn’t aware of. It got overlooked by the doc’s and caused some fairly serious problems for my little guy. The problem was caught and the med was changed, but it took a month for him to fully recover from it.

It happens.
But the more you know the better off you and your child will be. Who knows, taking that few extra minutes to read up on something, or ask the question could save your child and you some pain.

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Piled on: Becoming the Expert,
Heather posited at 7:12 pm | 2 comments so far
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